tag:blogger.com,1999:blog-7070899434981664008.post5854121487981466480..comments2023-04-13T01:50:26.059-07:00Comments on Live Art.fully: A Legacy of Chronic JoyJenniferhttp://www.blogger.com/profile/07810736265869305528noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-7070899434981664008.post-41874837165335530982013-06-17T16:05:06.040-07:002013-06-17T16:05:06.040-07:00excellent points altogether, you simply gained a e...excellent points altogether, you simply gained a emblem new reader.<br /><br />What could you suggest about your post that you made a few days <br />in the past? Any positive?<br /><br />My web-site ... <a href="http://www.Jafmonline.net/userinfo.php?uid=15353" rel="nofollow">florists lake mary fl</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-82492472971201172552013-06-06T14:09:20.907-07:002013-06-06T14:09:20.907-07:00Howdy! This is kind of off topic but I need some h...Howdy! This is kind of off topic but I need some help from an established blog.<br />Is it very hard to set up your own blog? I'm not very techincal but I can figure things out pretty quick. I'm thinking about creating <br />my own but I'm not sure where to begin. Do you have any ideas or suggestions? Thank you<br /><br />Feel free to visit my web site - <a href="http://www.ehealthscores.com/providers/izd-lstxsxsxtz/TY-TRUDEAU.html" rel="nofollow">physical therapy table</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-37455435002882183482013-06-03T01:00:50.739-07:002013-06-03T01:00:50.739-07:00It's going to be ending of mine day, except be...It's going to be ending of mine day, except before end I am reading this great piece of writing to increase my knowledge.<br /><br />Here is my website; <a href="http://directory.italkwebs.com/user_detail.php?u=wzpteri" rel="nofollow">Florist St Cloud FL</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-67405212604393184872013-06-02T07:05:14.527-07:002013-06-02T07:05:14.527-07:00Hey, I think your site might be having browser com...Hey, I think your site might be having browser compatibility issues.<br />When I look at your blog in Opera, it looks fine but when opening in Internet Explorer, it has some <br />overlapping. I just wanted to give you a quick heads up!<br />Other then that, awesome blog!<br /><br />Also visit my web-site: <a href="http://sushienorlando.com/sushi-dinner-menus" rel="nofollow">Hunters Creek Sushi</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-76302224417154644692013-05-31T10:00:56.941-07:002013-05-31T10:00:56.941-07:00Howdy exceptional website! Does running a blog lik...Howdy exceptional website! Does running a blog like this require a great deal of work?<br />I have no knowledge of programming however I had been hoping to start <br />my own blog in the near future. Anyways, should you have any ideas or tips for new blog owners <br />please share. I know this is off subject but I simply had to ask.<br /><br />Thank you!<br /><br />Also visit my website <a href="http://giantowner1121.blog.fc2.com/blog-entry-1.html" rel="nofollow">giantowner1121.blog.fc2.com</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-73984369420604769462013-05-31T06:27:06.412-07:002013-05-31T06:27:06.412-07:00You need to take part in a contest for one of the ...You need to take part in a contest for one of the finest websites on the internet.<br />I'm going to recommend this web site!<br /><br />Here is my web-site - <a href="http://www.cylex-florida.com/winter+park/florida+spine+and+rehab+center-11068647.html" rel="nofollow">physical therapy assistant books</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-59665744493122278852013-05-27T16:40:02.765-07:002013-05-27T16:40:02.765-07:00Great beat ! I wish to apprentice even as you amen...Great beat ! I wish to apprentice even as you amend your site, how could <br />i subscribe for a weblog web site? The account aided me a acceptable deal.<br />I had been a little bit familiar of this your <br />broadcast offered brilliant clear idea<br /><br />my blog post :: <a href="https://www.Supermedia.com/spportal/spportalFlow.do?_flowExecutionKey=_c9A4E21C2-7E6E-B8FF-D31D-AD70B803E604_k25F8EC4C-C156-FD36-CF08-FA5223C0EC3B" rel="nofollow">Massage Therapy insurance</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-78864399293279265842013-05-20T07:36:09.898-07:002013-05-20T07:36:09.898-07:00Remarkable things here. I am very glad to peer you...Remarkable things here. I am very glad to peer your post.<br />Thanks a lot and I am taking a look ahead to contact you.<br />Will you kindly drop me a e-mail?<br /><br />My web-site <a href="http://fonzation.com/" rel="nofollow">treatment for thoracic outlet syndrome</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-33624450926055785382013-05-19T11:00:04.806-07:002013-05-19T11:00:04.806-07:00Wonderful web site. Plenty of useful information h...Wonderful web site. Plenty of useful information here.<br /><br />I am sending it to some pals ans also sharing in delicious.<br />And certainly, thank you in your sweat!<br /><br />my webpage; <a href="http://usgloveonline.com/" rel="nofollow">usgloveonline.com</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-12447857108356741692013-05-09T23:48:35.887-07:002013-05-09T23:48:35.887-07:00Good day! I could have sworn I've visited this...Good day! I could have sworn I've visited this site before but after going through some of the posts I realized it's new to me.<br />Anyways, I'm definitely happy I found it and I'll be bookmarking it and checking back regularly!<br /><br /><br />Take a look at my blog ... <a href="http://www.jeffsymmondsgolfschools.com/short-game-schools/" rel="nofollow">short game instruction</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-58666505138867386752013-05-09T18:30:25.216-07:002013-05-09T18:30:25.216-07:00Ahaa, its pleasant discussion regarding this artic...Ahaa, its pleasant discussion regarding this article at this place <br />at this website, I have read all that, so now me also commenting here.<br /><br /><br />Also visit my homepage; <a href="http://tampabay.maplist.org/viewthread.php?tid=653356&extra=page=1&frombbs=1" rel="nofollow">back spasms during pregnancy</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-76841518075665623032013-05-08T22:36:19.292-07:002013-05-08T22:36:19.292-07:00Every weekend i used to pay a visit this
site, fo...Every weekend i used to pay a visit this <br />site, for the reason that i wish for enjoyment, as this this web page <br />conations really nice funny material too.<br /><br />Also visit my web-site ... <a href="http://www.jeffsymmondsgolfschools.com/las-vegas/" rel="nofollow">Las Vegas Golf Lessons</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-10586134286573583322012-10-19T21:33:28.594-07:002012-10-19T21:33:28.594-07:00Powerful post, perfect photo. Dazzling that you co...Powerful post, perfect photo. Dazzling that you could spell ankylosing spondylitis in grade school! Interesting and sad to read the progress of your disease. I felt terrible for years there about how much pain you were living with on a daily basis, and I remember being surprised that you found the stiffness so disconcerting when the pain was "normal" for you. I'm thankful that AS is not usually a fatal disease because you are such a treasured friend and I need you, but I really hope the new doctor is able to make a significant difference to reduce the effects of your disease. I worry about your future, and I worry about your now, so thank you so much for doing that! Seeing doctors is bravery as well. I discovered in high school how gratitude makes the difference in pain and fatigue, but it's been a long haul and I need the reminder. Thank you for using your words and reminding us of that, and often. Love you!!!Wendywandernoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-53403391171641476282012-10-09T00:06:02.386-07:002012-10-09T00:06:02.386-07:00I hope so. You sure are, Rachel.I hope so. You sure are, Rachel.Jenniferhttp://livelifeartfully.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-67022591308791906252012-10-09T00:05:38.373-07:002012-10-09T00:05:38.373-07:00Thank you so much for reading and sharing your sto...Thank you so much for reading and sharing your story, Christie!<br /><br />I'm so sorry for how well you can relate to mine.<br /><br />It's good to walk together.Jenniferhttp://livelifeartfully.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-44027628791458843722012-09-29T12:16:02.114-07:002012-09-29T12:16:02.114-07:00Hi Jennifer,
I wanted to introduce myself. I'...Hi Jennifer,<br /><br />I wanted to introduce myself. I've been reading your blog for a couple of months now and through you I found Sara's site via one of your posts made during the last week of her life. I'm so grateful her family has left her site up. I'm reading as much as I can, as quickly as I can in case they decide to take it down. I'm sad I never got to "meet" her. What an amazing woman she was. And what an amazing woman you are as well. You inspire me to do everything I can to be the best I can be in spite of my illnesses. I too have some kind of spondyloarthritis (as well as possibly Crohn's, but they can't find it through scopes... I have symptoms and serums that are indicative though). I also have Sjogren's and I'm now being tested for dysautonomia. Right now the doctor is calling my arthritis zero-negative RA because there is no damage in my SI or hip joints (but there is a considerably amount of daily, ongoing pain in those areas). I can completely relate to you comment about the pain being so widespread that you can't even sort out where it's coming from. And for me it varies in nature too... one place spasms, one place a stabbing/burning pain, another a deep intense, nauseating ache... all going on at the same time. I think that's one reason why it took me so long to get a diagnosis. I couldn't articulate the pain, it was so intense, varied, and widespread. That and I "don't look sick". In fact I "look" healthier than most women my age. And at times I would look in the mirror and wonder how I could feel so horrendous inside and still look as well as I did. I have to admit after all these years of chronic pain and fatigue it takes a lot more effort to now look "well".<br /><br />Thank you for posting your story here. It sounds a great deal like mine, except that to my knowledge no one else in my family has ever had AS. My grandmother had "arthritis", her mother and one of my grandmother's sisters, both had "arthritis" in their spines and based on pictures I believe one of my grandmother's brothers had arthritis in his spine as well. My great-grandmother and her son were quite stooped by the time they reached middle age (my grandmother and her sister however were not). Yet I'm not HLA-B27 positive so I'm not sure if they had AS with out the known gene or if they had some other form of spinal arthritis. They were elderly in the 1940's and lived out in the country, no doctor gave them an official diagnosis of "arthritis", there is no record just word of mouth history handed down from one generation to the next.<br /><br />Seven years ago my odd pains, mild fatigue and "sleeping wrong" pains went haywire. I woke up one morning and my right hip, knee and ankle hurt so badly I could barely walk. After that day things went downhill pretty quickly. It's taken me 7 yrs of unrelenting pursuit to be taken seriously and get a diagnosis, and now treatment. At this point I'm not all that concerned what they label the condition, I am just grateful beyond words to finally be getting treatment and some semblance of relief from this unrelenting, debilitating pain and fatigue. After 7 years it was truly starting to weigh on me in a number of ways.<br /><br />I so appreciate your posts. Thank you for being an inspiration.<br /><br />Blessings,<br />ChristieChristienoreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-44307979814698269542012-09-25T13:37:04.897-07:002012-09-25T13:37:04.897-07:00Simply beautiful. And thank you for sharing your j...Simply beautiful. And thank you for sharing your journey with us - we are all better because of it. You are an inspiration, a mentor, a women of courage...and most definitely a blessing of joy. Thank you.Theresahttp://www.onemomentonelife.org/noreply@blogger.comtag:blogger.com,1999:blog-7070899434981664008.post-65293200420765430242012-09-25T13:17:05.983-07:002012-09-25T13:17:05.983-07:00You are leaving a beautiful legacy, Jennifer. Jus...You are leaving a beautiful legacy, Jennifer. Just like Sara.Rachel Lundyhttp://www.cranberryteatime.comnoreply@blogger.com