Showing posts with label joy. Show all posts
Showing posts with label joy. Show all posts

12.01.2012

Between Hope and Joy


{Original Art Journaling by Jennifer LeBlanc 2012}

I've been in really rough shape. You know that if you read this blog much. 

A month ago, after a full spine MRI done to evaluate my Ankylosing Spondylitis, I was told that my MRI had shown something concerning. They recommended I have another MRI. If they saw what they thought they saw, they said it was potentially serious and unrelated to AS.

It was sixteen days of waiting and anxiety before the 2nd MRI. It took 90 minutes, and it was difficult. The pain had been at an all time high, and lying on a flat, hard table and holding extremely still for that long was really hard with AS.

I tried to breathe evenly and I prayed. I thought about my girls and my life. I thought about what life might be like with the serious disorder they were trying to rule out or confirm. I thought about how much worse my life could get, and how hard it already is. The pain was bad but I didn't want to blur my images or make another MRI necessary, so I held completely still and bore it.

It was dark outside when my husband and I drove out of the parking garage at the building where I had the test. I knew news would be coming in the next 24 hours -- news that might make me feel extreme gratitude that "all" I have is AS, or news that my life was going to change yet again, and not in a good way.

Throughout the 16 days I told very few people. I didn't want to worry anyone. But it made it difficult to journal or blog or even update my Facebook status. I was holding my breath. My last post was during that time. The fear was so strong.

The day after the MRI, I received two sets of news. One, the serious disorder they thought they saw I do not have. They ruled it out. Just to give you an idea of the fear I was dealing with, one of the potential results of that disorder is paralysis.

Relief.

I also found out I have more issues with my spine than I previously knew. That news was hard for me to process, but two+ weeks later, I'm at peace with it.

A lot has been changing in my life, and I'll post again soon. But for now, I've come out of the dark, and I wanted you to know.

I'm somewhere between hope and joy, and it feels tremendous.

9.16.2012

Joy in the Brave



I’m going home from a nearly three week long trip. I’ve traveled from the west coast to the east coast, from the Pacific to the Atlantic, by plane, car, and ship, and I’ve learned some things about myself and about traveling. I’ve learned some things about life. And it’s good.

I’ve been so eager to share with you all. You strong women who battle hard things on a daily basis and maintain your joy and humor through it all.

You whose child has autism, you who has constant dizziness, you who lost your mother and is still learning to navigate life without her, you who is fighting cancer they say may be terminal, you who lives with severe daily pain, you who fights the urge to starve your body or overeat, you in a stressful workplace;  you who lost a friend, you who is a single mother while your husband is deployed, you who grieves the loss of a child, you who is climbing the mountains of your own war.

You the collective brave.

You are strong women, and it’s my humble pleasure to hear from you, to learn your stories and trade encouragement.

I’m writing this post on a seven hour flight. My daughter is beside me, her arms embracing two stuffed bunnies and a cat. I sip cranberry juice and peer out the window at clouds beneath the wings of this mighty metal bird.

I think of each of you and your stories, and I am grateful. I’m grateful to have gotten to know you, and grateful for your emails and support of Live Art.fully, my cyberspace corner. Live Art.fully is like a little cottage where you’re welcome. You’re invited in for warm muffins and hot drinks in the winter, and lemonade in the summer. You’re welcome to recharge here and tell me your story, and I’ll tell you mine too. As Pooh and Piglet agree, “It’s friendlier with two.”

As I told you in my Attraversiamo post, traveling hasn’t been a strength of mine. I’m not afraid. I know people who suffer from anxiety when flying or driving, and that isn’t my problem, it’s just that I feel off-kilter and unbalanced when away from home and what’s familiar. The last few times we flew, I had a baby along each time, and my idiosyncrasies and weaknesses became amplified by jet lag, time zone changes, and sleep deprivation from a teething baby or a toddler unfamiliar with her new sleeping quarters.

To tell the truth, I was afraid of my own ability to handle traveling so far, for so long, staying in a house with so many people and not having the solitude I’m used to. I was worried about my pain levels and whether I’d be too ill to manage two cross country flights. I didn’t want to be problem for those around me. I didn’t want to be miserable. I didn’t want to make a scene.

It’s with relief and deep gratitude that I share that the trip went well. AS didn’t stay home; I still had pain every day. I still had to manage stiffness and fatigue. Some of that was worse, given the beds that weren’t my own. It was hot where we went, at least compared to what I’m used to, and muggy. I was thankful for air conditioning and ceiling fans in the rental house we stayed in with my husband’s family.

We ate out and cooked in, and rode the ferry and swam in the ocean, and stayed inside out of the mid-day heat some days. We got grape slushies and ice cream, and visited the marina to look at the water and boats, and walked the island and looked in shops.

One day, our last full day on the island, my sisters-in-law and mother-in-law and I went shopping. My knees were bothering me and I was running low on energy. I found a public hammock and “hung out” between stores. Only on an island can you do that, a shopping mall just doesn’t have that same perk!

After shopping we found a restaurant screened in like a porch.

“Four for dinner?” asked the hostess.

“Four for dessert,” we replied, giggling.

It was a special time, sipping our decaf coffee and laughing. We ordered all four desserts on the menu and split them each in quarters to share. It was the day after International Chocolate Day and we celebrated aptly with mocha swirl cheesecake, chocolate chess pie, and chocolate pecan fudge cake. It was glorious, the hours of being with women and only women.

“It’s so much easier [browsing shops] without the kids,” I commented to my sister-in-law.

“I know,” she replied, "I haven’t had to tell you to behave yourself even once.”

I got to meet nieces and nephews, and get to know my husband’s siblings better. I loved that.

I wore a swimsuit and went without makeup and got in the water and did many things outside my comfort zone. And you know what I realized? I realized that there is joy in the act of being brave. Not just relief in getting through it, not just pride in having done it, but JOY on the other side of the fear. You might get knocked over by a wave and get water up your nose and scrape your knees on the abrasive Atlantic ocean floor, but when you come up out of the water, you haven’t drowned. You’ve survived.

If you pass by your chance to be brave, you may miss the unexpected joy that is waiting for you.

Some of this may seem trivial, but another thing I realized is that fear is fear. My fears and discomforts may be vastly different than yours, but they are no less scary and uncomfortable. When I rise above my fears, I am being brave, even if the same thing would not require courage for you. It’s good and right that we celebrate our victories, big or small.

There were hard times and good times, magical moments and moments I was desperate to go home and could not.  It was a long journey. But I found my joy on the other side of being brave, and that was perhaps the most unexpected gift of this trip. It was my gift by the sea.

7.17.2012

Traversing the {Chronic} Trail



“The marvelous richness of human experience would lose something of rewarding joy if there were no limitations to overcome. The hilltop hour would not be half so wonderful if there were no dark valleys to traverse.” {Helen Keller}

I read other blogs that chronicle personal lives of chronic illness, and they are soothing. I am not alone. I find myself inspired by reading how others manage their conditions, especially when they do so with great intention, deep thought, and positivity. 

So why am I afraid to write too much about my own condition? As human beings, aren't we longing for connection, for stories and accounts of what it's like for someone else?

I am afraid because I do not want to come across as dramatic or negative. I want to write the truth of what is, and quilt it together with inspiration and insights into hardship and suffering, comfort and prevailing joy. I want to show you my reality just as fact, not for attention or as an outlet for whining.

I have been struggling lately with this desire to express my experience. How do I do it in a way that is real and true and still inspirational?

How can I show you my world, through my eyes, so that you see (as I so often do) that hardships serve a tremendous purpose of bringing into focus what is important, and of amplifying the simple into a peace and joy that is enough?

I want to write to show those just becoming ill, just going through the diagnosis process, that there is beauty in a "chronic" life. I want to leave a map. And not just a map, but a sturdy pair of hiking boots that don't blister, and a bottle of cold water, and some hearty trail mix. I want to cheer you on up those hills so that you can see the beautiful view just over the top.

I'd love your input into how best to accomplish those goals.
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