9.23.2010

Diagnosis: Confirmed



I've been waiting for months to see the Rheumatologist, and finally, yesterday was the day. I was incredibly nervous and anxious. I just wanted a diagnosis, some answers as to why I've been so tired, feverish, stiff and in pain.

I was suspecting Ankylosing Spondylitis, which is a chronic inflammatory condition which attacks the joints, but can also effect many other parts of the body. It is an autoimmune disorder. In the United States it effects only about 0.5-1% of the population. It is similar in a lot of ways to Rheumatoid Arthritis, but RA generally effects the small joints of the hands and feet, and Ankylosing Spondylitis, AS, generally effects the large joints, such as spine, hips, neck & shoulders.

So 2:30 p.m. finally arrived on 9/22/10. Finally. I limped into the exam room.

My appointment was 2+ hours long. And at the end of it, the doctor confirmed the diagnosis I was expecting: Ankylosing Spondylitis.

I feel relieved and validated to finally know what's going on. I feel hopeful that we will find a treatment or combination of treatments that will improve my current quality of life. I feel concerned about the possibilities for the future. Possibilities like not being able to walk, needing a wheelchair or cane, having my joints fuse and losing range of motion.

But overall I feel relieved, because now we know for sure, and we can start trying treatments.

My wish is that by Christmas I'll feel much better.

15 comments:

  1. I can relate to the comfort of at least knowing what's going on. I wish you well!

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  2. Interesting that physical activity will help alleviate symptoms (from what I just read). I am praying that this diagnosis will move you closer to feeling better!!

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  3. Knowledge = Power
    Good luck to you as you continue on this journey to healing. I pray your Doctors will be good ones!!!

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  4. glad to hear there is a confirmed diagnosis, yet I can understand the fears that the future can bring. Praying for you. Really hope you feel better soon.

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  5. Thinking good thoughts for you. You are an amazing person and a great mom!

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  6. You are in our prayers. I had no idea how much pain you are in. We get so caught up in our own problems and our day-to-day issues, that sometimes we forget to think of those that have always been so kind to us. Being in constant pain is something I live with, but I have great friends and a wonderful support system. You are one of those people that have always been kind to me. I'll think of you always and pray constantly for you.

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  7. glad you finally have an answer ~ wishing you healing

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  8. Thinking of you right now!!! Knowing that this isn't easy. Your Earthly Father and Your Heavenly Father understand your pain. Love you lots, Aunt Sheryl

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  9. You are one talented lady - God is close by in pain. I'm confident He will give you every day exactly what you need. Am praying you will find answers and healing. Love your site. Deb S

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  10. I'm so glad you were finally able to see him and get diagnosis. I hope you are able to find good solutions that make a big difference in your life. Praying for you always! Love you!

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  11. You amaze me! What an inspiration you are!! My wish is also that you feel better :-) Prayers and hugs and more prayers are being sent your way.

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  12. I agree with Wendy -- it's a relief to know an answer to at least one question, finally! I'm always thinking of & praying for you Jenn.. and, too, since I can't be there to offer any kind of physical assistance, I hope you know that you can always e-mail or call me if you want to..

    I'll keep an eye & ear out for the latest research on A.S. -- but knowing you, you have probably already done a helluva lot more research than most people have =)

    Love you, miss you lots!

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  13. I'm so glad you finally found out what has been causing you to feel bad. I'm praying for wisdom for your doctors and peace for you.
    Love, Brenda

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  14. Jenn, I'm so sorry you have this disease. It will cause pain and hardships. But you can conquer them with Jesus help. In my cancer journey, I have asked God "what do you want me to be doing". After my friends funeral I still continue to ask God, "why am I still here, what is it that I should be doing for you?" God will show me! I know from His promises that he will continue to be with us through whatever it is that we face. You and I will follow Mother's example and we'll "soldier on" until Jesus comes to take us home with Him. I'm proud of you!

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  15. You have my prayers. My husband's father suffered from AS for years. I'm sure your dr. has already checked your Vit. D levels, but if not make sure he/she does so.

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